Patient question: Does a newborn with congenital bladder exstrophy need surgery for his current condition? Do I need to be seen? What preparations should be made before the consultation? Doctor’s reply: Surgery is possible. If possible, earlier is recommended. The current procedure is performed at any age, but it is better not to be too late. Patient Question: How much does the surgery cost and what are the chances of success? I am worried that my child is too young to undergo such a major surgery. Thank you! Doctor’s reply: I understand. It’s hard to say how much the surgery will cost, but if everything goes well, it will be about 30-40,000 yuan. The surgery is one of the top difficult surgeries in pediatric urology, so there are more possible problems. The new procedure we are currently using is an improvement from what I have talked about in previous articles, and if all goes well, you will have a better result in one surgery. However, problems such as penile necrosis, unsatisfactory appearance, post-operative urinary incontinence, and post-operative urinary leakage can occur. The new procedure is called the KELLY procedure. The current experience is mostly good, but there are some unsatisfactory ones. Patient question: What is the success rate of the surgery and will it affect school and life in the future? Thank you! Doctor’s reply: If you recover well, there will be no effect. But for example, there are some who will still have urinary incontinence, which will affect their lives. If the function of the penis is not good, it will affect the sex life. Patient’s question: How many days will it take to be hospitalized, operated on, and discharged? Doctor’s reply: Usually the hospital stay is not too long, depending on the recovery situation, usually one or two weeks if it goes well. However, if you travel a long way, you will have to stay near the hospital for a while to recover after discharge. I want to have surgery when I’m older, but I’m afraid it will affect the best time for surgery. How many surgeries should I have for this disease? Doctor’s reply: Very understanding. It is recommended to have the surgery as soon as possible. If you recover well from one surgery, you can stop having surgery. The review will depend on the recovery situation. Patient’s question: Now my child’s bladder is a little red, and it is usually very important to change sterile gauze and diapers, so in order to prevent infection, you can teach me a way, thank you! Doctor’s reply: Generally speaking, you can wash with saline, then cover the local bladder part with cling film and change it regularly. Show me a picture of the bladder. Patient’s question: Usually my bowels and urine are normal, but I can’t see my penis. Thank you! Doctor’s reply: You should be able to see the head of the penis under the bladder. The penis is generally shorter with an ectopic bladder, but it will come out a little after surgery, but the overall appearance is shorter. Patient Question: Will it affect fertility and urinary incontinence? Thank you! Doctor’s reply: Incontinence depends on the situation, many people will have improvement or completely manageable, while others will have persistent incontinence. Fertility has been reported abroad, but there is no experience in China. Patient Question: Will it affect my sex life? My child has bladder exstrophy, is it mild, or severe, and is surgery a hassle? Thank you! Doctor’s reply: We can’t be sure until we examine him in person. Most bladder exstrophy is complete, it doesn’t matter if it’s mild or severe, it’s very complicated. It is not easy to say, the penis is too short may affect the sex life. But it may not have a major impact either. Patient Question: How long does it take to operate on a bladder exstrophy? About how many days will I be discharged from the hospital? Can I go back to Tibet after staying in the hospital for 10 days for observation? Doctor’s reply: Narrowly defined surgical operation time, most days, one day, or longer. Discharge time, 1-2 weeks. Initial recovery time, about a month. Patient Question: My family is particularly worried about my child’s recovery after surgery. You can help me with the good situation after surgery, in order to appease my family, because my child’s condition is rare, my family has never heard of this disease, and in the future, my child will go to school, have the ability to live, and talk, walk and other parts of the body will not have abnormalities! Doctor’s reply: The main problem after surgery is focused on the bladder and penis, that is to say, the ability to control urination and sexual ability. This may affect the quality of life or the kidneys. But there will be no effect on intelligence, mobility. Patient question: Is the new procedure a big wound, because my child is just a few days old and the wound is too big for the child to bear, thank you! Doctor’s reply: The wound is from the belly button to the tip of the penis. I should say that it is still quite big. It can’t be helped. The newborn also has to stay in the monitoring room, and after the operation also has to stay in the monitoring room, parents do not accompany not to see, also can not be helped. In short, the risks are high, so be prepared. Patient’s question: I’m really worried, are all the nurses taking care of the baby in the monitoring room? Doctor’s reply: Both the NICU and the ICU are cared for by nurses. The youngest age we have done is 2 days. We give each baby 100% effort, but I don’t think any individual case in the past is completely representative of the next case.