Nephrotic syndrome initial diagnosis and follow-up instructions

  1. The medical history to be informed at the initial consultation includes: When was the diagnosis made at which hospital? How many days after the first dose of hormones did it turn negative? How many times has the disease recurred? How much hormone was taken at the lowest? Has the hormone been stopped? Have you ever used second-line drugs (cyclosporine, FK506, cyclophosphamide, MMF)? Have you used Chinese medicine?  2. Before the initial consultation and each follow-up consultation, you should fill in the information sheet of Chinese medicine symptoms of children with nephrotic syndrome.  3.Urine test and microscopy should be done before each follow-up consultation (can be done at the nearest hospital). If you cannot check the morning urine, you should also check the urine routine at any time of the day.  4.At the time of follow-up, you should inform the doctor of the number of Western and Chinese medicines and the number of days to be prescribed, and the doctor will make a judgment according to your condition.  5.Contents of regular blood tests: Generally, kidney function, liver function, biochemistry, blood lipids, blood uric acid, blood routine, blood vitamin D3, blood calcium and phosphorus should be checked once every 1-3 months, and if the result of a certain test is abnormal, a short-term recheck is required. For those taking methylprednisone, regular (1-3 months) ophthalmologic examinations for cataract and glaucoma are required. For those with glaucoma, an ophthalmologic review is required every 2 weeks while taking eye drops to lower pressure.  6, with the second-line drugs to check before the content: taking cyclosporine and FK506, before taking the drug, need to check the blood pressure, chest X-ray, urine to check the renal tubular function, blood to check the kidney function, liver function, blood routine, glycosylated hemoglobin, blood biochemistry, if possible, can do CD4/CD8 examination, the first dose of 1 week to review the blood concentration of the drug, after every 1-3 months to review the blood concentration. For those who use cyclophosphamide and MMF, blood routine and liver function should be checked before using the drug, and CD4/CD8 examination and chest X-ray can be done if necessary.  7.Check before stopping hormone: blood cortisol and blood ACTH. 8.After stopping hormone, Chinese medicine should still be taken for six months to one year.