Letter to Parents of Children with Kidney Disease

In a message to me, a parent wrote: “Having a child with kidney disease at home, the heart of the whole family is like a heavy stone pressed on it, and the joy of life disappears from then on.” During my many years of clinical career, I have contacted many parents and personally felt the helplessness and despair of parents when their children were sick, and also shared the joy of parents when their children were cured. The onset, diagnosis and treatment of kidney disease are very complicated, not every parent has the correct understanding and mindset, in fact, many parents have taken a lot of detours, as a pediatric nephrologist, I have some words to say to the majority of parents, I hope to help you raise awareness and build confidence. First, the vast majority of pediatric nephropathy is curable and has a good prognosis. Common pediatric nephropathies include nephrotic syndrome, post-infectious acute nephritis, purpuric nephritis, IgA nephropathy, isolated hematuria and/or proteinuria, etc. The prognosis of these diseases is generally good, and only a very small number of them develop into end-stage renal disease. In the past 20 years, with the development of science, a large number of immunosuppressants with good efficacy and little side effects have been introduced, so that some difficult-to-treat renal diseases, such as focal segmental glomerulosclerosis and lupus nephritis, etc., have also gained good efficacy. Therefore, there is absolutely no need for parents to be pessimistic and disappointed. Unfortunately, most of the kidney diseases last for a long time, several years or even more than 10 years of recurrence, so parents should have a heart to fight a protracted war, “the road is winding, the future is bright”. Secondly, if your child has kidney disease, you should have a comprehensive and systematic examination before treatment, and try to confirm the diagnosis. In the message to me, many parents always ask whether the child’s condition will be very serious, whether it will develop into uremia, how to treat it, in fact, these children’s examination is done very little, it can be said that there is no diagnosis at all, in medicine, the diagnosis of kidney disease is very important, it not only determines the child’s treatment program, but also determines the child’s disease whether it can be cured, so the parents should first of all take the child to a Therefore, parents should first take their children to a hospital that specializes in pediatric nephropathy for a systematic examination to confirm the diagnosis. Because many tests for kidney disease are very specialized, not every hospital’s pediatrics department can diagnose this type of disease, so I hope that parents should inquire which hospitals are more specialized before choosing a hospital, in order to save time and money, and less detour. Third, whether to choose Western medicine treatment or Chinese medicine treatment. Chinese medicine has a history of more than 2,000 years. Before the introduction of Western medicine into China, Chinese medicine was the only means of treating diseases and maintaining human health, and its scientific nature and value have been tested by history. Western medicine was born in the west, it also makes great contribution to the survival and development of human beings, and the theory develops very rapidly, and the treatment means are endless. Objectively speaking, Chinese and Western medicine have their own advantages in the treatment of kidney disease. Here is an example, for nephrotic syndrome, the hormone therapy of western medicine is reliable and stable, but the side effects are relatively large, such as children’s appetite is too good, very excited, restless, always clearing the throat, easy to catch a cold, which is tricky to deal with by western medicine; single Chinese medicine treatment can also make part of nephrotic syndrome to turn negative, but the efficacy of the treatment is not as stable as hormone therapy. It is worth noting that: the side effects of hormone can be reduced through the use of Chinese medicine, so many parents choose a combination of Chinese and Western medicine, i.e., in the early stage of the disease, hormone therapy is the main treatment, supplemented by Chinese medicine to reduce side effects; in the middle stage of the disease, that is, when the hormone is gradually reduced, supplemented by Chinese medicine to reduce the colds and recurrence; in the late stage of the disease, that is, the hormone is small dosage and discontinued for a period of time, the main treatment of traditional Chinese medicine, mainly strengthening the spleen and tonifying the kidneys, regulating the kidney, and regulating the kidney. It is to strengthen the spleen and tonify the kidney, and regulate the yin and yang. Many experienced doctors specializing in kidney diseases in western hospitals will prescribe some proprietary Chinese medicines for children. No matter in western hospitals or Chinese medicine hospitals, the combination of Chinese and western medicine in treating kidney disease has become a consensus. Fourth, kidney puncture is very safe. Because the diagnosis of some kidney diseases is very complicated and there is no way to confirm the diagnosis by routine examination, so doctors ask the children to receive kidney puncture examination. When it comes to renal puncture, parents are always very afraid that their children will be wasted, in fact, this worry is unnecessary, because the puncture process is guided by ultrasound, that is to say, the doctor is looking at the kidneys for the puncture, and the puncture is accomplished by a gun, and the whole process of the puncture takes less than 1 second, so it’s very safe, and the history of renal puncture at home and abroad in the past 60 years has shown that this kind of test does not have any effect on the kidneys in the future. Any effect.