I am from Hangzhou, Zhejiang Province, 25 years old, now in Ningbo. Not married, no boyfriend. I am engaged in human resources work, work is quite leisurely.
It was March 2006 when I found out about my tumor. My periods were normal, but I was lactating (at that time, I thought, “Isn’t breast milk only for breastfeeding women? I was a young girl, how could I be lactating? I was trembling in my heart and didn’t dare to tell my family). I had the courage to go to the Chinese medicine breast specialist at Ningbo Third Hospital, where I underwent many tests and spent a lot of money, but finally the blood test result for prolactin was 60 or so, with a normal value of 3.3 to 26.7, and the MRI result for pituitary tumor was 0.7 CM. When the diagnosis came out, I was trembling and thought about it for a long time before I gently told my family about my endocrine disorder. I didn’t dare to tell my parents about the word “pituitary tumor”, because I hadn’t graduated yet and the medication cost money. At that time, I kept blaming myself in my heart, I was born in a rural area, the family conditions are not very good, four years of study in college has caused a great financial burden to my parents, on the eve of graduation and found this disease ……, the road ahead is quite confusing. Since then, I began to take bromocriptine, first half a tablet in the morning and evening, a month later to check the lactogen 50, increased to one tablet in the morning and evening, a month later to check the lactogen 40, continue to increase to 1.5 tablets in the morning and evening, the lactogen finally reached the normal range 26 (normal range 3.3 ~ 26.7), because the lactogen is normal, from then on I will be very arrogant no longer test the lactogen. The biggest problem I had with bromocriptine was constipation, sometimes I only had to go to the bathroom once a week. As the saying goes, not going to the bathroom in a day is equal to smoking 2 packs of cigarettes, and I think I smoked N packs of cigarettes during this long period of more than 2 years and almost 3 years. I maintained my dose of 3 pills a day until my MRI in May 2007 which showed a pituitary tumor of 0.4*0.5CM. I was really excited at that time because the tumor had shrunk. I rushed to that hospital to show the film to Professor L. After asking about my age and marital status, he decisively told me to continue to take the original 3 tablets and to review the MRI in six months. I was very obedient and continued to take the same amount of medication, but later I learned of his opinion because I was not married and the surgery might affect my fertility.
In 2008, my natal year, many of my friends and classmates around me reminded me of the horror of my natal year, but I was not afraid because I was surrounded by my loved ones. However, as time went by, in the words of Xiangnan in “Struggle”, everything went wrong. First, my favorite person left me for one reason or another. I don’t want to speculate on the reason why he left me, but it was his departure that caused me to be very unhappy for most of the next year.
In May 2008, I had an MRI result of 0.3*0.6 CM pituitary tumor, and I was lucky enough to have a PRL of 32, which was again out of the normal range. After I stopped taking the medication, I had three lactogen tests, the first was 62.7, the second was 60, and the third was 55, and since 2008, my urine has become cloudy with a cooler color. Professor L still asked some questions about age and marriage, read the film, asked about my dosage, and was very shocked to hear that I was taking 3 tablets. I thought to myself, “Why wasn’t I shocked when I heard I was taking 3 tablets in ’07, but now I am so shocked? In the end, his answer was to continue to maintain the original dosage, not to reduce the dosage, and to review the MRI in six months. I spent a day going back and forth, and all I got was less than 10 sentences from Prof. L. I know I shouldn’t blame him, but perhaps as a patient, I really need a doctor’s personal comfort and answer, not something like a perfunctory feeling, I know Prof. L. is very busy, and he had to rush back to Shanghai that day. I should even thank him for showing me the film in his busy schedule. However, walking on the street, my tears were uncontrollable, sometimes people’s sense of helplessness is so strong and uncontrollable.
After 2 months of tossing and turning, I was having a hard time deciding between surgery and non-surgery. I had a feeling of uneasiness inside me all the time. I always felt that Professor L did not give me the answers I wanted during my trip to Hangzhou in May, and because of the rush, there were so many questions I did not ask in detail. So, at the beginning of August, I made an appointment by phone with Prof. B and Prof. L at Shanghai Huashan Hospital to hear the attitude and answers of these two experts. It was also this trip to Shanghai that made me feel more deeply the truth of what not to have a disease and what not to have no money.
Professor B suggested that I continue to take medication, but after hearing my dosage and drug resistance, he immediately changed his attitude, saying that I could have surgery or not, and let me choose for myself. I was so confused at that time, it was as if I only believed in Prof. L. Prof. B’s words didn’t have any effect on me, they were just a reference, that’s all. Prof. L. looked at the film, took my measurements and said that the smallest diameter of my tumor was probably less than 0.3cm, and said that I should not operate (not that I didn’t recommend it, but I couldn’t), because surgery might not find the tumor, and I thought to myself that it would be a waste of a knife. I backed off.
After returning from the trip to Shanghai, I continued my medication career, taking half a pill in the morning and half in the evening. A month later, my lactogen test showed no change. It was as if I was discouraged ……
Since an aunt in our unit also had a pituitary tumor, and the damn tumor was successfully removed by Professor Li 6 years ago. So, Prof. L. became a myth in my mind. I felt that my surgery had to be done by him.
Until later, I slowly learned that Wei Shaobo in Beijing is also an expert in this field, so I regularly asked some of my questions on Wei Shaobo’s forum and told him the answers I received from Professor L. Professor Wei replied directly that as long as the diagnosis of pituitary tumor is confirmed, it can definitely be found in the surgery …… in the forum On the forum, Prof. Wei always guided me clearly and told me with certainty that the success rate of the surgery was 80% to 90%, and suddenly I felt my life was full of hope. So, one month after resuming medication in September, I started to stop taking medication in October.
In November, I decided to buy a plane ticket and flew to Beijing on the 30th (Sunday). Then I arrived at the 301 Hospital and registered with Prof. Wei (Monday clinic, Prof. Wei’s number is usually registered a day in advance, so if you want to go to Wei’s clinic, it is best to make an appointment before 5 pm on Sunday, and if you are really in a hurry, you can get an additional number from Prof. Wei on Monday morning). The reason why it can be so smooth, but also thanks to the edge is a group of YuDi and 7_&_7 (said his wife is also called Kiki) of the great help, really very grateful, all the way, really feel deeply what is called out to rely on friends. Here to mention, after hanging Wei’s number, in the road to find a hotel, I carry a big bag, suddenly feel sorry for myself, thinking why do anything I am alone, so while walking and asking for directions while crying (shame on you). Beijing people are particularly warm, looking at me this kind of virtue, are very enthusiastic to help me, that quality is really a high ah.
The next day, I finally met Professor Wei, I thought to myself, he is so bullish on the forum, the clinic is not also particularly bullish ah. When I introduced myself as Kiki from the forum, Prof. Wei said with a smile, “Maybe you think I’m very bullish, yes, I’m bullish on the forum, but I’m only saying the corresponding words because I have the strength. I told him about the diagnosis given to me by Professor Li in Shanghai, and he said something about his evaluation (not much to say here), and then looked at my film and said that the size of my pituitary tumor was actually more than 0.3*0.6CM, and that the actual size was almost one centimeter. At that time, I was very confused, and I even began to wonder if Prof. Wei had deliberately made my tumor bigger so that I would be more determined to have the surgery. Finally, he did not forget to encourage me and said, “It’s okay, although you have been taking medicine for more than two years, but the tumor is so small and the prolactin is not very high, since the medicine is not effective, you should have surgery, and I also strongly recommend you to have surgery, I am very confident that the success rate of your surgery should be 80% to 90%”. Then, he called the handsome Dai of Zhongxing Hospital (that is, Dai is really handsome, that is much more handsome than Dr. Shou, joke joke:) ). The same day I was admitted to Zhongxing Hospital, I hurriedly went to the bank to get money, paid the hospital deposit, and then asked my parents to come to Beijing to take care of me in an orderly tone. The next bed aunt was surprised that I was a little girl from Zhejiang who went to Beijing alone, and after dealing with everything that should be dealt with, she promptly informed her parents and praised them one after another, I was quite embarrassed, hehehe ……
On December 2, mom and dad arrived at Zhongxing at 7:00. The actual fact is that you can find a lot of people who are not able to get a lot of money for the purpose of the actual surgery. So, on the 2nd I was scheduled to go into battle. On this day, Prof. Wei had 4 surgeries, and I was the second in line, and the first in line was the aunt in bed 24 next door. From the time I decided to operate to the time I was told the operation time, I was not even a little bit scared inside. However, when the aunt in the next bed was pushed out of the operating room at around 8:40, with a tube in her mouth and no sense, I was really shocked, and that was the first time I started to flinch a little in my heart, but everything was arranged, and I could not absurdly choose to give up.
After that, Dr. Dai came to the ward to call Mom and Dad to talk, and I knew in my heart that he was going to talk to them about the risks of some similar surgery. I calmly smiled at Dr. Dai and asked him not to scare Mom and Dad. When my aunt was pushed out of the next bed, I saw my dad’s eyes were red and he didn’t dare to look at them. In my heart, I was both scared and heartbroken, but I knew that at this time only I was my own worst enemy, so I had to be calm, and I hoped that this calmness of mine would give encouragement to my parents ……
According to the nurse’s request, stripped himself of all his clothes, wearing a hospital gown, with an IV drip on his hand that he didn’t know what effect it had, I walked into the operating room, and at the moment when the door of the operating room was about to close, I smiled easily and said to my parents, “Wait for me to come back, trust me.”
I walked to the operating table with my head held high, the equipment inside the operating room was very new to me, it seemed very simple, some some equipment I don’t know how to describe, can’t name, but I saw that nose dilation container (I don’t know if that’s what it’s called), so thick that I started to worry about my nose, haha ……. I looked left and right for Professor Wei, wanting to find him, perhaps the psychology of the time is only to see his heart to stabilize it, but unfortunately did not see him before and after the surgery. The nurse lady said, “Take off your hospital gown and climb on the operating table.” I was quite shy, take off the gown is not a naked, because Dr. Dai and anesthesiologist are in, two big men in it, but shy, but also too late to think too much, took off the gown to climb on the operating table, the nurse transferred the location of the drip from the hands to the feet, and then used something like a quilt to wrap me up the whole. The anesthesiologist sprayed something into my mouth, and after a few words with Dr. Dai, I didn’t know anything else. After about 40 minutes, I woke up, dazed and confused, not painful or uncomfortable, but my mouth seemed to be inserted with something, I could not speak, I was thinking, how not to give me surgery ah, my head kept turning, just then a male voice (I do not know who it was, eyes could not open at that time) said: “The operation is over, do not move!” I was very excited and wanted to say thank you, but I couldn’t make a sound. I would like to say here that the surgery was not painful, not at all.
From the time I entered the operating room at 9:02, to the time Professor Wei came out of the operating room and made a successful gesture to my parents at 9:30 (this is according to their description), to the time I was pushed out of the operating room at 9:50, everything went so smoothly. Since I woke up relatively quickly, the tube inserted in my throat was removed not long after I came out of the operating room.
When I came out of the operating room, I was conscious all the time. I held my mom and dad’s hands hard, trying to tell them in this way that I was fine and not in pain at all. I thought the surgery was so simple and painless, but the first 24 hours after the surgery, I felt what hell on earth means and understood what water is the source of life ……
After the tube in my mouth was removed, the nurse put the oxygen tube into my mouth. Since my nose couldn’t breathe and my mouth was filled with cold air (oxygen), it was like a drought, and I felt my tongue was dry to the point of cracking. At the same time, I kept vomiting some blood in my throat, as if it came up from my throat or from my nose, in short, the saliva I spit out was always mixed with blood, due to the anesthesia reaction, I also vomited hard once, vomiting all the blood on the pillow on the bed and clothes. At that time I was able to speak, I kept begging my parents to give me some water to drink, even with a cotton swab on my lips and tongue coated a little, but that is not satisfied, the more coated the more dry. At 3 to 4 o’clock in the middle of the night, the reaction of wanting to drink water was even stronger, but my father was so stubborn that he would not give me any water no matter how I begged. I took a look at the next bed and saw that the uncle in the next bed was feeding water to his aunt, so I couldn’t control it anymore and secretly drank the 200ML of water placed on the table, but my mouth started to dry up again in a while, so I finished the originally prepared bottle of juice (hidden by me under the bed, almost 1.5L) in 3 times and hid the bottle after drinking it for fear that my father The bottle was hidden after drinking for fear that my father would scold me, haha ……, maybe it was a post-operative reaction, no matter how I drank it, my mouth was still dry. Here, I hope you are not like me, I think my willpower is weak, otherwise how would I take the risk of stealing water to drink it, because I am less than 24 hours after surgery, and sit and lie down and take drinks, from time to time I feel something in my nose to the mouth as well as nose, and drink so much water, the amount of urine will certainly not be less, my catheter bag will not be full for a while, the nurse The next day, I was brutally told that I had a urinary crash, and the nurse gave me one tablet of Mirex, and then half a tablet of Mirex the next day, after which the crash improved.
The morning of the second day of surgery, the catheter was removed and the nasal stuffing was also removed. When the stuffing was removed, the nose was quite painful and there was a lot of bleeding, and after that there was often discharge from the nose, and I was always afraid that it was cerebral medullary fluid. After that, every day the situation is improving, appetite is good, after the surgery I started to drink porridge and eat, 10 bottles of drip per day, 8 days in a row, and then discharged 。。。。
Postscript: If I hadn’t found Professor Wei, I might still be dying under the torture of bromocriptine. After the surgery, my aunt in the next bed got her period during her hospitalization. It was said that she had stopped menstruating for more than a year, but under Prof. Wei’s miracle knife, she got her period in less than 7 days, and the amount was normal. I had my period on the 20th day after the surgery, and although the amount was not much, the color changed from black to red, and on December 30, I had a prolactin test of 7.6, the first time in nearly three years that my prolactin was in the single digits, and I remember when I got the test results, I laughed happily, and people thought I was baffled. Thank you, Professor Wei, for saving me from pituitary tumors and my original heart block.