The role of parents in the treatment of children with precocious heart disease

  This topic does not seem to have much meaning, some parents may say of course parents want to see their children as soon as possible, but many parents of children in the process of seeking medical treatment for their children’s self-role there are some misunderstandings, analysis is as follows: taboo some parents may be taboo mentality, children by chance found a heart malformation, but are not willing to accept the reality, and thus hold the child’s disease with the passage of time Of course, there are also some parents who may inadvertently delay the course of their child’s disease due to economic problems, which often leads to cases of children missing the time for treatment. This is the most unfortunate situation for the child and also the most irritating for the doctor. Every time I come across such cases, there is a hidden pain in my heart. I remember several years ago, a young man in his 30s came to see me with a ventricular septal defect that had reached the point of being inoperable. Think of how a person would not have slowly perished if he had come to see me some time earlier!  Restlessness and anxiety Some parents may be restless and anxious after learning that their child has a precordial disease, which manifests itself by consulting all the doctors they can reach about their child’s condition, finding small differences in all the doctors’ answers, and later consulting around this small difference rather than the main contradiction, taking up a considerable amount of time for the progress of their child’s disease, thus making the child miss the best treatment opportunity during the long waiting process. I remember a child with an intact septal transposition of the great arteries, who was consulted from 7 days after birth. The doctor repeatedly told the child that surgery within 14 days is the best time to operate for his disease, but the parents repeatedly consulted around issues such as incisions, so that the child missed the best opportunity for surgery! What a pity!  ”Flush it out” and “gamble it out”?  There are many different types of precardiac disease, and the severity of the disease varies. For complex and serious cases, the benefit of surgery is not very big, the risk of surgery is very high, and the mortality rate of surgery is very high, the doctor does not recommend surgery in some cases due to many considerations. However, some parents have a hard time accepting this reality and demand that surgery must be done. These parents’ feelings are understandable, but medicine is not witchcraft, it is science. The parents of a child with pulmonary atresia, for whom there was no surgery at all, forced the doctor to operate, and if they did not operate, they made trouble everywhere. The parents of such a child once communicated with them that if their child was operated on, they would flush it out if it was successful, and they would be relieved if it was not. But for the doctor, no one wants to see the child die alive!  In short, the vast majority of congenital heart disease is curable, and quite a few of them are well-treated in due course, in other words, diseases that are highly treatable and have good results. In the process of seeking medical treatment for the child, the parents of the child can only achieve the best treatment for their child if they have the right mindset and work together with the doctor and the patient! For the sake of our children, let’s work together and collaborate with each other in order to fight the disease and save our lovely children!