Online consultation, how do people with epilepsy portray their condition?

  Most of the epilepsy patients who consult online are unable to describe their condition in detail and thus cannot get effective advice and treatment from online doctors.  In fact, epilepsy patients are extremely complex, with some having the disease for as long as 20-30 years, and even specialists are unable to obtain all of the patient’s disease-related information in a very short period of time. So, how do you express your condition in a limited amount of time and in limited words?  To describe your condition in detail, it is important to fully understand epilepsy-related knowledge, such as what causes epilepsy?  Are there any precursors before a seizure? How did the seizure occur? What do you feel after a seizure? How often do you have seizures? What medications are you currently taking? Is the medication effective? Have you received any treatment other than medication and how did it work? What do you need help with from your online doctor? …… Based on my years of experience in treating epilepsy, I suggest that patients with epilepsy describe their condition in the following ways: 1. Did you have any abnormalities during pregnancy? That is, did your mother have hypoxia when she was pregnant with you? Was there any drug intoxication? Was there any trauma? Have you ever had a preterm miscarriage?  2. Are you a singleton, twin or multiparous, and how many children are you?  3.Was your birth normal? Was it premature? Was it a difficult birth? Was it a cesarean or forceps assisted delivery? Was there any definite lack of oxygen at birth? Was there aspiration of foreign water or meconium at birth? Is the birth in a regular hospital or rural barefoot doctor-assisted delivery?  4.After birth, was there any fever, neonatal jaundice, pneumonia, intracranial hemorrhage, etc.?  5. Was there a history of febrile convulsions during infancy?  6.Is there any family history of heredity?  7.How old can you talk? How old can you walk?  8.Do you have the same intelligence as your peers?  9.Do you have left or right handedness?  10.What hospital diagnosed you with epilepsy?  11. How old are you? How many years have you had seizures?  12. Do you have aura before seizure? For example, visual aura – flashes of light, colored bands, gold stars, hallucinations, etc. before the seizure. Auditory aura – rumbling, passing train sound, buzzing sound before seizure, etc. Olfactory aura – Self-perceived special odor before the attack. Numbness of hands and feet aura. Headache aura. Chest tightness, panic, fear aura. Abdominal aura – nausea, vomiting, abdominal flatulence, rising service gas, abdominal pain, etc. before the attack.  13.How to have a seizure? –simple partial seizure, fugue seizure, complex partial seizure (such as mouth with chewing, swallowing, baring movements; hands groping indefinitely, touching the corners of clothes, unbuttoning, groping for surrounding objects, etc.; no answer when calling the patient, partial recall of seizure process after the seizure.) The patient may have a seizure, demented laughing seizure (laughing during seizure), psychomotor seizure (seizure with psychiatric symptoms), tonic seizure, clonic seizure, generalized tonic clonic seizure, myoclonic seizure (myoclonic epilepsy, epilepsy mainly manifests as myoclonic), etc.  14. Is there loss of consciousness during seizure? It is when you don’t know anything during a seizure and cannot recall the seizure process. Family members can determine if the patient has loss of consciousness during a seizure by calling the patient to see if there is a response. Has incontinence of urine ever occurred during a seizure?  15. Seizure frequency – how often do seizures occur, such as continuous status epilepticus, multiple times a day, several times a day, several times a week, several times a month, several times a half year, several times a year, etc., or do seizures not have any pattern? Are seizures worse during menstruation in women?  16. What are the oral medications you used to take? What is the current oral medication? What are the names of the specific drugs? What is the oral dose of each drug? Has the blood concentration been checked? What kind of oral medication is effective?  17.Have you ever experienced Gamma Knife treatment? Have you experienced buried wire treatment? Has a magnet been buried in the scalp? Has it undergone neuromodulation treatment? Have you been treated with craniotomy?  18.Are you suffering from any other diseases besides epilepsy?  19.What diseases have you suffered from in the past? For example: encephalitis, sepsis, brain abscess, hydrocephalus, liver-related diseases, kidney-related diseases, etc.  20.What is your IQ? How is your language? Has your memory declined? How is your calculation? Do you have visual field deficits? Are there any abnormalities in your vision, hearing, smell, or eye movement? Do you have normal muscle strength in all four limbs? Is the development of bilateral limbs symmetrical?  21.What tests have you had? Such as head CT, head MR, general EEG, long-range video EEG, PET, magnetoencephalography (MEG), cerebral angiography (DSA), etc. What are the results?  22. All tests, labs, medications taken, outpatient medical records, and inpatient medical records can be uploaded online.  Of course not all questions are answered, those related to you must be answered to facilitate the diagnosis and treatment of your disease.  Each tiny piece of information may be extremely valuable to the diagnosis and treatment of your disease. Please describe in detail.  A simple and rough description of your condition will not enable your doctor to obtain effective information and you will not get valuable diagnostic and treatment advice.  Due to various reasons of patients, there are always different degrees of differences between their own descriptions and the actual onset of the disease, so online consultation with a doctor can only provide a preliminary understanding of your condition, and can only give preliminary diagnosis and treatment advice.