Do children with epilepsy have recurrences after stopping medication?

  This is a common question asked by parents and a concern of doctors. Unfortunately, no doctor can say with the same certainty as a fairy that “it will come back” or “it will not come back”, and such an answer is obviously not scientific. In fact, doctors often predict the risk of recurrence on a case-by-case basis for each child.  Studies have shown that the factors that suggest that a relapse is unlikely after stopping medication are: no clear cause of the seizure has been identified; the child has normal growth and neurological function; there are no seizure-like discharges on the EEG; and the seizures are easily controlled with medication. If your child meets all of these criteria, then the likelihood of non-recurrence after stopping medication is high; if none of them are met, then the likelihood of recurrence is about 50% or higher.  In general, when a child on medication remains completely seizure-free for 2 years, you can try to taper off the medication. If the child’s specific circumstances suggest the possibility of relapse after discontinuation, for example, neurological dysfunction, onset after age 12, or a complex partial seizure type, the child can also be placed on hormonal medication until he or she remains seizure-free for 4 to 5 years and then be tapered off the medication. However, in either case, no one can guarantee that the medication will be seizure-free after discontinuation. In practice, when to consider stopping medication is a joint decision between the doctor and patient based on the patient’s specific situation.