Systemic lupus erythematosus (SLE) is an autoimmune-mediated, diffuse connective tissue disease with immune inflammation as the prominent manifestation. The presence of multiple autoantibodies in the serum, represented by antinuclear antibodies, and multisystem involvement are the two main clinical features of SLE. SLE predominantly affects women in their reproductive years. The cause of the disease has not yet been determined, and numerous studies have shown that genetic, endocrine, infectious, immune abnormalities and some environmental factors are associated with the development of the disease. Patients with lupus erythematosus should take care of themselves in many ways, which also has a very crucial role in the prognosis of the disease.
1. The prognosis also depends on the attitude toward the disease. Therefore, patients should maintain an optimistic attitude and good mood, and build up confidence to overcome the disease.
2, adhere to the “five to” and “five do not”. The “five wants” refer to “to follow the doctor’s advice, to take sufficient rest, to be happy, to eat a reasonable diet, to review regularly”. “Five don’t” refers to “don’t use drugs indiscriminately, don’t overwork, don’t sun exposure, don’t hearsay, don’t suddenly stop medication”.
3. Have a good environment for recuperation and treatment, and pay attention to rest and appropriate activities. Rest is very important for active lupus. 8-10 hours of sleep should be guaranteed at night, and early rest and lunch break or a nap should be arranged every day. During the remission period, appropriate activities and exercises can be carried out to enhance physical fitness and prevent weight gain, osteoporosis and muscle diseases caused by long-term use of hormones, but the activities should be carried out in such a way that no fatigue is felt afterwards.
4. Avoid triggers that aggravate the disease, such as infection, during pregnancy or after delivery, surgery, sudden discontinuation or rapid reduction of hormones, or overexertion, sun exposure, etc.
Consider a relapse of the disease and seek prompt medical attention if the following conditions occur.
(1) Fever of unknown origin, i.e. fever that cannot be explained by a cold, pharyngeal, pulmonary and urinary tract infections, etc. ;
(2) A new rash or a vasculitis-like rash on the fingers or other parts of the body;
(3) Recurrence of joint swelling and pain;
(4) Significant hair loss, excluding hormonal causes;
(5) Fresh ulcers of the mouth and nose;
(6) development of pleural fluid or pericardial effusion.
(7) increased proteinuria;
(8) Significant leukopenia or thrombocytopenia or anemia;
(9) Neurological symptoms, such as headache, vomiting, convulsions;
(10) Increased titer of anti-double-stranded DNA antibody;
(11) Increased blood sedimentation of 50 mm/hour or more;
(12) Decrease in complement, especially complement C3.
5, diet, it is recommended that SLE patients should eat nutritious and easily absorbed food. It is advisable to eat light, low salt, low sugar, low fat, moderate protein, and the best way to cook is to choose steaming, boiling, stewing, stewing, avoiding frying and excessive use of condiments. In addition, certain foods can trigger or aggravate lupus and should be avoided in daily life, including
(1) Foods containing more photosensitive substances, including celery, yellow cauliflower, cilantro, figs, purple clover, rape, yellow mud snail, etc., the consumption of which will aggravate the damaging effect of sunlight on lupus patients.
(2) Patients with lupus erythematosus who show internal heat of yin deficiency should not eat foods with warmth and heat, such as mutton, dog meat, venison, cinnamon garden and lychee, which can aggravate the internal heat symptoms of patients.
(3) Certain foods that can easily cause allergy are mostly seafood, including shrimp, crab, snail, mussel, scallop, yellow fish, carp, etc., which are commonly known as hairy things. Some patients with lupus erythematosus will have allergy after eating seafood (most patients with this disease are hypoallergenic), which will trigger or aggravate the disease.
(4) Spicy and stimulating foods, such as chili, raw onion, raw garlic, mustard, etc., can aggravate the phenomenon of internal heat in patients and should not be consumed.
(5) Foods with immune upregulation, such as mushrooms, shiitake mushrooms and other mushroom foods. In addition, you need to quit smoking and drinking, and eat less smoked or fried foods that are not good for health.