Early considerations for children with congenital heart disease after discharge from hospital

  There are many different types of congenital heart disease involved, and many different specific surgical procedures for individual patients. Once a child has completed surgery in the hospital and has passed the risky period and early post-operative treatment, he or she can be discharged from the hospital to continue oral medication and regular outpatient follow-up if the condition is stable. Just after leaving the hospital, many families may have an unsettling feeling because after all, leaving the hospital room and the doctors and nurses, how to take care of the child after discharge and help them to successfully complete the early post-operative recovery seems to be a very confusing and stressful thing for many families. First of all, we have to relax, because the physician arranges for the child to be discharged from the hospital indicating that he is basically over the post-surgical risk period and can celebrate a little. But we should not let our guard down, because there are still some things that need to be taken care of after precordial surgery. I put together a brief summary of the commonalities in the recent points of care after discharge from precordial surgery, hoping to be helpful to moms and dads.  1.Take medication on time: Before discharge, our pharmacist will give you the discharge medication prescribed by the doctor and tell you in detail how and when to use each medication. The timing and variety of medications may vary from child to child depending on the surgery and the situation at the time of discharge. Even for the same child, not all medications are given at the same time, but strictly according to the doctor’s orders and the pharmacist’s or nurse’s preaching. We commonly use cardiac drugs: digoxin; diuretics: tachyphylaxis (furosemide) and ambrisentan (spironolactone), vasodilators: enalapril and captopril; potassium supplements: potassium chloride tablets or potassium chloride extended-release tablets; drugs to reduce inflammatory response: prednisone and anti-inflammatory pain; drugs to lower pulmonary artery pressure: bosentan and sildenafil or vardenafil; anticoagulants: bamire (enteric aspirin) and warfarin. The dosing interval for digoxin is 12 hours and should be strictly adhered to and the heart rate or pulse count should be measured before each dose according to the discharge instructions, and should be suspended if the heart rate is too slow. Children taking digoxin should not be given calcium at the same time. Captopril is generally given at 8-hour intervals and also needs to be completed at strict intervals. In addition Enalapril or Captopril, because of their hypotensive effect, are best not taken at the same time as diuretics such as tachyphylaxis or ambrisentan, and appropriate intervals of 1-2 hours can reduce the risk of low blood pressure. Bosentan needs to be reviewed regularly for liver function indicators, and if there are significant abnormalities you need to contact your doctor to adjust or change your medication. Povidone and Bamil need to be taken with meals to reduce gastrointestinal irritation. Warfarin should be reviewed regularly for coagulation parameters and the dose should be adjusted according to the doctor’s requirements. The doctor will supplement or extend the use of certain drugs again if needed during outpatient review.  2, diet control: the dietary principles within one month after surgery is to prohibit oil, limit salt, limited. It is important to control the amount of fluid intake in the early recovery after heart surgery. Because excessive intake of water will increase the burden on the heart and affect the recovery of heart function. Therefore, it is necessary to strictly control the daily fluid intake according to the amount taught at the time of discharge. Older children can return to a near-normal general diet, but the same principles of forbidding oil and limiting salt can be applied, with appropriate supplementation of lean meat or eggs, which are high in protein and low in fat, as well as appropriate daily intake of vegetables and fruits. However, it is not advisable to eat too much, so that the diaphragm is not raised to affect the heart or the intake of too much increases the burden on the heart. Do not eat bone broth, fish soup and other soups containing more fat.  3, wound care: 10-14 days after the removal of the drainage tube thoracic surgery outpatient stitch removal. During the period, ensure that every 2-3 days to the hospital outpatient or regular clinics to change the medicine once. The wound should not be cleaned within one week after the removal of the stitches. If the scab on the surface of the wound has fallen off and the wound is dry and clean without oozing, you can take a bath one week after the removal of the stitches.  4.How to use the scar removal patch: One week after the removal of the stitches, start using it when you can take a bath. Open it and put it on the wound directly, use it for 5 hours on the first day, then take it off and observe whether there is redness and allergy. If there is no allergy, after that the use time is extended by 2-3 hours per day. Finally, for normal use, it is recommended to apply the patch for 15-20 hours per day. Sweat and stains from the scar patch can be rinsed with water, then wiped dry or dried and reapplied. The effective time of use is 1 month, and the second patch is used after 1 month, and each patch is used for 1 month.  5, key observations: in addition to the need to measure the child’s heart rate or pulse before each dose of digoxin, slow heartbeat when suspended, for all children there are some matters that require routine attention to observe. If there is recurrent fever, vomiting and refusal to eat, restlessness, or if the older child reports abdominal pain, be alert for pericardial effusion. The aseptic inflammatory response of postoperative pericardiotomy syndrome combined with inadequate dietary control may lead to a large amount of pericardial effusion with these symptoms. Once you experience similar symptoms, you should be alert and contact your doctor in a timely manner, and if necessary, review your cardiac ultrasound immediately to find out if there is a pericardial effusion and the size of the effusion. Most small to moderate amounts of pericardial effusion can be absorbed through medication and dietary control, but individual children with large amounts of pericardial effusion may require emergency surgery to place a tube for drainage, otherwise the resulting heart compression may be life-threatening.  6, outpatient review: the beginning of several reviews are generally in accordance with 1, 3, 6 months and 1 year after discharge thoracic surgery outpatient registered follow-up, with special circumstances can be determined after consultation with the attending surgeon.  Of course, the type of congenital heart disease and surgical treatment are very different, and the postoperative recovery process and care plan certainly cannot be completely homogeneous. The above is a little summary of my personal experience in the recent management of children after discharge, and I hope it will be helpful to those of you who will be discharged from the hospital.