Daily Considerations for Adults with Still’s Disease

The number of patients diagnosed with adult Still’s disease is increasing, and many patients do not know what “Still’s disease” really is, and some even say, “I have a foreign disease”. In fact, adult Still disease is the English translation of “Adult-Onset Still Disease”, which is what we used to call “Allergic Sub-Sepsis This is what we used to call “allergic subsepsis”. Because the name has the word “sepsis”, the patient sounds terrible, and for some other reasons, doctors are reluctant to call it that. The daily precautions are as follows: 1. It is important to avoid contact and application of allergic things. I have seen many patients who are an allergic body, allergic to many foods or drugs, and often have a history of upper sensory with antibiotics, moving to a new home, dyeing hair, makeup or eating certain allergic foods before the onset of the disease, and the contact with these allergens is one of the triggering factors for its onset. Therefore, contact with these allergens needs to be avoided. Of course some patients themselves do not know what they are allergic to, one can observe carefully, in addition, blood can be drawn for allergen testing, which can find some of the allergens. 2, keep a happy mood: many patients say, as long as my mood is bad, there are signs of disease recurrence, therefore, it is very important to maintain a good mood. 3, medication should be individualized: you need to assess whether the medication brings you more benefits or disadvantages. If your symptoms are severe, and the disease has more than 2 episodes per year, each lasting longer, it is recommended that the medication needs to be used for a longer period of time. If the number of episodes per year is very few, the duration of each episode is short, and the symptoms are not severe, the side effects of long-term drug use may outweigh the benefits, and short-term drug use is recommended. 4. For patients who need to use hormones for a long time, the following precautions should be taken: (1) Hormones cannot be stopped suddenly, but can only be gradually reduced under the guidance of a physician after the disease is controlled; (2) For those with stable disease, hormones should preferably be taken at 8:00 a.m.; (3) If there is surgery, childbirth or trauma, the hormone dosage should be temporarily increased; (4) Low salt (sodium <3g/d) and low fat diet, especially to control animal (5) Those with high blood glucose should limit staple foods (rice, steamed buns, etc.), sweets and snacks to those containing less sugar and higher fiber, and self-monitor blood glucose and make diet records. (6) Drink more chrysanthemum tea or mung bean porridge, eat more fresh cucumber, cooked garlic, potassium-rich oranges, oranges and tomatoes, and eat more calcium-rich milk, cheese and shrimp skin, but those with abdominal distension and pain need to control gas-producing milk or chocolate; (7) Those with renal impairment should be given a low-salt, high-quality, low-protein diet (<40g/d), limit the intake of vegetable protein, and forbid the consumption of salt-cured foods. . Those with obvious edema and low urine output can take a decoction of 40g of dried watermelon peel together with 60g of fresh thatch root to help eliminate edema and diuresis. 5, regular monitoring of disease development and improvement: Generally speaking, the early signs of disease relapse is the re-emergence of sore throat, swollen lymph nodes or fever, increased blood leukocytes and elevated serum ferritin, at this time need to promptly consult a doctor to identify whether the disease relapse or combined with other problems such as infection. 6, regular laboratory tests and examinations: each drug requires different items to be monitored, but blood and urine routine and liver and kidney function are routine items that need to be monitored. If there are no abnormalities, the monitoring interval can be gradually extended. Other special monitoring items need to be decided by the doctor, such as hydroxychloroquine sulfate needs to be monitored at the same time, such as electrocardiogram and eye examination.