What does a newly diagnosed tuberous sclerosis patient need to do? I am often asked by patients what needs to be done for our child who has just been diagnosed with tuberous sclerosis. What medications are available to treat it? Here is a unified response for the convenience of all patients’ families: Most of these children are born after 6 months of age, present with white spots or epilepsy, and are diagnosed with tuberous sclerosis (abbreviated as TSC below) at the local hospital. The first thing that needs to be done is to clarify the diagnosis as soon as possible. Since TSC is a rare disease and fewer doctors are knowledgeable about it, we recommend that the families of the children bring comprehensive examination information and take their children to a specialist for a full examination to clarify the diagnosis of TSC. We also strongly recommend that a newly diagnosed patient undergo a comprehensive examination, which we call “baseline examination”, to be used later as a comparison and dynamic observation for early detection of some diseases, such as brain tumors, and treatment at an early stage of the disease to obtain a better quality of life. TSC is a disease that can occur in multiple organs, and the chance of disease in each part of the body varies with age, so it is difficult to have one doctor who can see all diseases. When different lesions are encountered, different doctors need to be chosen to see them. It is recommended to join the TSC Patients Association. Due to the special reasons in China, the internet is full of information about the treatment of various TCM and traditional medicine, especially for TSC, which is impossible to cure from the root. It is good to join a patient association to find some friends and get the most professional treatment information to avoid being misled. The most commonly used drug for TSC combined with epilepsy is Xiponin, which is not yet available in China, and I have written about it, so you can read the following article; for epilepsy caused by tuberous sclerosis, I think it must be treated early and actively, because there is a clear link between seizures and the child’s IQ impairment. If the epilepsy improves, the child’s cognitive decline will also be delayed; it is important to note that medication is the treatment of choice for seizures in tuberous sclerosis; surgery should only be considered if medication is ineffective; medication is preferred for both infantile spasms and Lennox-Gastaut syndrome (LGS) due to tuberous sclerosis.