What should parents do with so many sequelae after kernicterus jaundice?

My baby was born in a small hospital, and because it was a normal delivery, I was hospitalized for 3 days and then went home. When I arrived home, I found that my baby’s face was a bit yellow. When I asked the elderly, they said that it would be yellow for a few days after birth, so I didn’t pay much attention to it. On the 9th and 10th day, my baby’s face became more and more yellow, and he started to refuse milk and love to sleep, so I felt that something wasn’t right and rushed to take my baby to the hospital, which did a checkup and decided to change the blood for treatment right away. The doctor told us that the baby was suffering from kernicterus jaundice, which could cause brain damage, but there was still hope that he could return to normal with active rehabilitation in the future. Can you appreciate how I felt at that time? I regretted and blamed myself, regretting that I was so ignorant that I had delayed my baby! What is Kernicterus Jaundice Kernicterus Jaundice – also known as bilirubin encephalopathy. It is the deposition of bilirubin into the basal nucleus of the newborn’s brain, the suboptic nucleus, the pallidum and other parts of the brain, so that the neural nuclei are yellowed, resulting in cerebral palsy. Kernel jaundice staging 1, warning stage: manifested as lethargy, breast refusal, hypotonia, embracing reflex weakened or disappeared and other inhibitory symptoms, but also manifested as whistling pause, bradycardia, about half a day to 1 day into the spasmodic stage. 2.Spasmodic period: it is characterized by spasm, increased muscle tone, screaming, nystagmus, difficulty in whistling, convulsions, or torsades de pointes and other symptoms of excitement. The spasmodic symptoms of preterm infants can be inconspicuous, and the children will enter into the recovery period after 1-2 days of treatment. 3.Recovery period: first, the sucking and reaction gradually recovered, then the whistling improved, the convulsions relieved, the spasms reduced and disappeared, this period lasted about 2 weeks. 4.After-effects period: generally appear in 2 months to 6 months after birth, manifested as involuntary, purposeless, uncoordinated movements of limbs, aggravated by nervousness; facial muscles, articulation, and sound-constructing organs are also involved, manifested by flow of drooling, difficulty in mastication, speech impediment, hearing malfunction, underdevelopment of dental enamel, crying and restlessness, and backwardness of intelligence, and ultimately develop into hand-foot-type cerebral palsy. How much jaundice value can harm the brain The impact on the brain cannot be judged by the amount of jaundice value alone, but if the jaundice value exceeds 20mg/dl, it must be taken seriously. The impact of jaundice value is to be combined with the baby’s birth time and jaundice index to determine the size of the baby’s jaundice, if the baby was born within 24 hours of jaundice, timely diagnosis and treatment. Generally, the jaundice value of newborns reaches its peak when they are 4-6 days old. If the baby’s jaundice does not show signs of receding after a week, it should be considered pathological jaundice, which may cause brain damage. How to determine the type of newborn jaundice by index 1, physiological jaundice appears two to three days after the birth of the newborn, and will reach the peak in four to six days. The normal value of newborn jaundice in this case is between 2mg/dl and 12mg/dl. 2. The normal value of jaundice in full-term newborns is 12.9mg/dl (mg/100ml), which means that a bilirubin level of less than 12mg in 100ml of blood is normal. The normal value of jaundice in premature babies is bilirubin below 15 mg/dl (milligrams per 100 milliliters). If these values are exceeded, the newborn may be suffering from morbid jaundice. What about the sequelae of nuclear jaundice? Only some of the sequelae of kernicterus jaundice can be cured. If your baby is diagnosed with kernicterus jaundice, rehabilitative care should begin as soon as the attack is stabilized. Brain tissue is immature and still growing rapidly until the age of 3. Abnormal postures and movements are not fixed. During this period, the brain has great plasticity, high compensatory ability and strong reorganization ability. If benign stimulation is given at this time, the brain can rebuild the damaged part of the nerves with the newborn cells or replace the cells that have already died, so that the brain can be reorganized or rebuilt around the damaged part, so that the brain function can be compensated for in a good way. Parents are advised to choose the right rehabilitation organization. Some hospitals have rehabilitation departments, and there are also some privately-run rehabilitation organizations. Parents should find a good reputation and a rehabilitation teacher with a qualification to carry out rehabilitation, which will have better results. Rehabilitation centers usually do a comprehensive assessment of the baby to see which areas of the baby has problems, and then develop a corresponding training program. Training methods for babies with cerebral palsy Training for babies with cerebral palsy can be done in various aspects such as vision, hearing, touch and movement. However, it should be noted that all training should be done when the baby is awake and quiet, and the intensity of stimulation should not cause fatigue to the baby. 1, auditory stimulation: every contact with the baby with its conversation, hanging wind chimes above the bed, with different sound toys to stimulate the child’s sense of hearing, awake to play soft, happy music. 2.Visual stimulation: hang brightly colored toys, such as balloons, flowers, etc. within the baby’s line of sight for the baby to watch, often talk to the baby, with brightly colored pictures, toys, etc. to tease the baby to look at, follow the object, in order to train the baby’s attention to people and objects. 3, touch training: touch massage between two feedings, 1 or 2 times a day, 10-15 minutes each time, massage in the palms of both hands coated with massage oil, massage the baby’s face, chest and abdomen, limbs and back, touch and baby gently talk to the baby to give the baby the enjoyment of love. 4, head up training: when awake, put the baby in the prone position, in front of the teasing its head up and turn its head and gradually increase the holding time. 5, other training: sensory integration training, such as rolling balls, swinging, etc., abnormal posture or movement behind the baby, according to the baby’s movement patterns, muscle tone, etc., Chinese medicine acupoint massage, water breeding, etc.. Baomao tips: 1, parents to accompany the child, in the rehabilitation class, parents to learn, because more training is at home, not just a few minutes in class. After parents learn, they should also consciously train their babies at home. 2.Communicate more with the trainer, who is usually very experienced, and let the trainer guide you on how to train your child at home on which programs to make your baby progress faster. 3.Join some baby rehabilitation weibo group, more communication with parents, mutual support, encouragement, exchange of information. Finally, parents are reminded that rehabilitation is a long process, but for the sake of the child, parents must have patience and stick to it. In dealing with the matter of rehabilitation, it is not because there is hope that we persist, but because we persist that there is hope.