Chen Tongxin, Department of Pediatrics, Shanghai Xinhua Hospital: The stem cell transplantation we do is mainly for some primary immunodeficiency diseases, which is not the same type of disease as the one you described. According to your genetic diagnosis, your child should have hemophagocytic syndrome. So I can’t tell if a stem cell transplant is needed or not, it will require active communication between you and the doctor you are seeing.
The status of the patient has a great impact on the survival rate of the transplant, such as health status, infection before transplant, etc. So survival rates are not very consistent from disease to disease.
If no more serious complications occur, the cost of transplantation is around 200,000.
Patient: Thank you, Professor Chen, for your busy answer. I still don’t understand, isn’t the disease my child has an innate immune deficiency? How should this hemophagocytic syndrome be treated? Don’t you need to do transplant? Then why did Beijing Children’s Hospital and Daopei Hospital ask us to do a transplant as soon as possible? As a parent of a child, I am very anxious, but I don’t know how and where to treat to save my child’s life. Professor Chen, please help me and tell me what to do.
Chen Tongxin, Department of Pediatric Internal Medicine, Shanghai Xinhua Hospital: I don’t mean that you don’t need to do transplantation, but that hemophagocytic syndrome is not in my scope of diagnosis and treatment, I don’t understand its treatment, it belongs to hematology disease. We are dealing mainly with some immunologic diseases. The congenital immunodeficiencies that we treat include: severe combined immunodeficiency; immunodeficiency diseases with antibody deficiencies, etc.; eczema thrombocytopenia with immunodeficiency and other diseases.
Patient: Oh, thank you so much Professor Chen, thank you, do you know where to treat this disease better, thank you Shanghai Xinhua Hospital Pediatric Internal Medicine Chen Tongxin: Because I am not this specialty, I do not know very well which hospital is better