Guidance on daily living for patients with ankylosing spondylitis

  (a) Maintain good body posture In order to prevent ankylosing spondylitis patients may prematurely occur in the spine ankylosis, resulting in hunchback deformity, to maintain the function of the movement of each joint, except for the acute period and the active period with severe pain, should be corrected posture and joint function exercise. Patients should maintain the correct posture when walking, sitting and lying. When standing, they should try to maintain a posture with chest up, abdomen in and eyes looking straight ahead. Sitting position should also keep the chest upright. They should sleep in a soft and firm bed with low pillows, take more supine position, straighten their legs and avoid positions that promote flexion deformity. If upper thoracic and cervical spine involvement occurs, the use of pillows should be discontinued. Measure height regularly. Keeping height records is a good measure to prevent early spinal curvature that is not easily detected.  Do not bend to avoid low back pain or fatigue, how comfortable how to do, so that long-term can accelerate the deformity of the spine. In order to maintain the function of the spine and joint activities, patients should often carry out the neck, thoracic, lumbar vertebrae in all directions of forward flexion, backward, left and right rotation and other activities, in order to maintain the mobility of the thorax, patients should often deep breathing and chest expansion exercises, in order to maintain the mobility of the hip and knee joints, to prevent contracture deformity of the hip and knee joints, should often carry out squatting and other activities. In short, patients with ankylosing spondylitis try to prevent stiffness of the spine, tendon contractures, muscle atrophy and loss of joint function through automatic and passive joint activities.  (B) Appropriate forms of exercise According to the patient’s interest and ability, appropriate exercises can be selected, such as walking, jogging, cycling, swimming, tai chi, table tennis, etc., which can reduce joint pain and fatigue, reduce dependence on drugs, and have a good psychotherapeutic effect. However, care should be taken to avoid strenuous exercise.  (C) Reasonable diet and nutrition Patients with ankylosing spondylitis often suffer from complications such as anorexia and anemia due to joint pain and other symptoms. Therefore, it is necessary to increase nutrition reasonably for patients in their daily diet, which should generally be high in protein, high in calories, high in vitamins, and easy to digest, and attention should be paid to supplementing trace elements such as calcium and iron. Avoid spicy, fatty, sweet and alcoholic foods. It is advisable to diversify the diet and maintain a balanced nutrition. However, for patients with different symptoms, the dietary therapy chosen is not the same.  (D) Living In terms of living, the patient’s room should be sunny, ventilated and dry, and should not live in a damp and cold place. Do moderate housework at home, but avoid prolonged periods of time in one position. Reduce or avoid physical activities that cause persistent pain. When the patient has difficulty squatting and standing, replace the squatting toilet with a sitting toilet or put the toilet seat on a higher cushion.  When the patient has difficulty walking, walking aids such as walkers and crutches are needed to support weight and maintain balance. Assistive devices will make it easier to perform daily activities, such as a long-handled shoe puller. When driving a car, wear a seat belt and adjust the height of the head cushion on the seat so that it is behind your neck. When backing up is difficult, you should install a wide field of view mirror. To prevent spinal injuries, sudden drops and collision movements should be avoided. Smoking causes deterioration of lung lesions and affects lung and thoracic movements, so it is best to quit smoking. Change the work that is suitable for the condition as much as possible.  (E) Work environment The vast majority of patients can continue to work and change to a job suitable for their condition whenever possible. However, it is important to avoid work that involves prolonged back tension or bending over. Change the posture frequently, at least once an hour; maintain a certain amount of activity every day.  (F) maintain a good state of mind As ankylosing spondylitis patients, mostly young people in their 20s, believe that they suffer from this lingering and difficult to heal, and can even lead to disability, prone to emotional pessimism, feel confused about the future, day-to-day anxiety, anxiety. This psychological disorder is very detrimental to the recovery of the disease. You should face the disease correctly, maintain a happy mood and positive attitude towards life. A good psychological state can restore the immune function of the body to normal, and maintaining a happy mood is also an important condition for the prevention and treatment of the disease. It is often seen clinically that patients who are emotionally optimistic and have a harmonious family have a faster stabilization and less relapse. What’s more, as long as ankylosing spondylitis is actively treated with doctors, most patients are able to completely discontinue their medication, leaving the disease in a state of relative quiescence and allowing them to work, live, marry and have children normally.  First of all, we should recognize that although ankylosing spondylitis is a long-term chronic process with an obvious tendency for family clustering, it is not a genetic disease. The cause of ankylosing spondylitis is not well understood and cannot be cured at this time. Some patients require long-term medication to control the progression of the disease, and patients must cooperate with treatment.  Secondly, we need to fully understand the treatment of this disease and not create a rush to heal mentality. Some patients have been treated for a period of time, but the symptoms are not obvious, or the symptoms have returned after a period of time, so they become impatient, doubt the treatment method and treatment effect, and stop treatment on their own.  In fact, the treatment methods and drugs for this disease, some of them work quickly, while others need to be taken for several months to take effect slowly, and the disease is very repetitive, climate change, colds, fever, excessive fatigue, etc. can often trigger the recurrence of the disease. Therefore, we must fully understand the long-term and recurrent nature of the disease in the treatment, establish the idea of a long-term battle, not only because of the temporary improvement of the disease and blind optimism, but also do not worry about the recurrence of the disease, we must adopt a patient attitude. Although the drugs used to treat ankylosing spondylitis can have certain toxic side effects, they are safer when applied under the guidance of a specialist.