When will the nightmare wake up?

  I have always been very sympathetic to my epileptic patients. Although I sometimes get angry because my patients do not listen to my medical advice, which makes it difficult to control their seizures, or they take a detour or even pay a heavy price, I still love my patients, and I still do my best to serve them, to think about them, and to try to alleviate their suffering.  If psychological illness is a bit self-inflicted, epileptic patients are completely tricked by God, and once a person has a seizure, it means a nightmare: the tranquility of the family is shattered, schooling is cut short, jobs are dismissed, marriages may be interrupted, and even sexual life is put to an end. As a clinician, I always try to give my patients as much clinical knowledge and skills as possible to solve their problems, and never intend to get promotion, promotion, research opportunities and materials on patients. However, what I feel quite accomplished is that the patient will be the first to return the money at the next follow-up visit, so much so that other patients once mistook me for a red packet and stared at me with contempt.  Epileptic patients are indeed suffering. I have come into contact with many patients, and social discrimination and refusal to take responsibility make even simple jobs such as parking meter, janitor, or handing out advertising leaflets, lost because of a single seizure. Faced with patients who are at a loss, I feel extremely distressed, but there is nothing I can do but make full use of my professional knowledge to relieve the patients’ suffering.  So far, only two-thirds of seizures can be completely controlled, and the remaining one-third are difficult to control. “new methods” and “new advances”, that is simply inhumane! After all, epileptic patients who are having nightmares and dreaming that they can wake up from their nightmares will go ahead without any hesitation and courage once someone suggests to them that there is a bright road ahead and they can completely get rid of the gloom and resume normal life.  Ah Shan, female, 32 years old, secondary school education. Recurrent episodes of unconsciousness and twitching of limbs for 7 years. Ah Shan started to have the disease after her marriage, visited many doctors, took medication for a long time with poor results, and had a grand mal seizure almost once every 2 months. When she visited a doctor, he said, “No pregnancy! Asan wanted to be a complete woman and mother of a child, she came to me when she was most depressed, five years ago. At the time, I was dismayed. Do doctors have the right to forbid their patients to become pregnant? It seems that there is no law prohibiting epileptics from having children!  After the consultation, I found out that not only did Ashan have grand mal seizures, but also partial seizure symptoms such as frothing, blankness, and shaking of one limb, which could be diagnosed as “epilepsy, partial seizures, generalized generalized seizures”. However, the 24-hour video EEG and cranial MRI did not show any abnormality. The grand mal seizures gradually disappeared with gradual adjustment of medication, but there were partial seizures such as dazed intervals.  After the grand mal seizures were controlled, I encouraged Asan to have children. I think that there are risks in everything we do, and although the risk of having the next generation with epilepsy is higher than that of a normal pregnant woman, and the risk of pregnancy with medication is even higher, it is not risk-free for a normal person to get pregnant, and it is not free of deformities for a child born to a normal pregnant woman, so it is worth considering to face the risks and try bravely for the sake of family stability and harmony, and to have a perfect life for yourself. But the prerequisite is: must do a good prenatal examination, must be willing to bear the consequences, one without the other. Anything less, free of discussion.  Asan was willing to listen to me. Fortunately, the patient did not have a major seizure during the pregnancy! And she ended up giving birth to twins in one go! The grandmother was so happy that she hugged the boy every day and left the girl to be taken by herself. Later, because I found that Asan always carry the girl over to get the medicine, under the inquiry only to know the old man’s preference for boys.  After that, due to strain and other reasons, Ah San started to have grand mal seizures again. She had 1 seizure every 6 months, and the medication adjustment did not work. The video EEG and MRI were repeated again, and no abnormality was found.  Further on, I encouraged Ah San to return to society: either for living or to pass the time, I advised the patient to work to reduce the possibility of disconnection from society. After that, Shan learned how to operate a computer and took on many jobs, including office clerk, salesperson, and distributing advertising leaflets, but her working environment and income deteriorated and she lost her job every time because of seizures. She told me that her supervisor was checking her work and that she had to hurry back to distribute flyers. I told her she could come back after work to get her medication to avoid delays.  After that, for 2 months, Shan didn’t come over again. Today, Shan suddenly came to me for advice: whether the attack could be controlled or not. With tears in her eyes, she told of her misfortune that she had lost her job again because she had worked hard and recently had a grand mal seizure during work hours. Recently, she had changed to another doctor, who recommended hospitalization for examination and surgery. Ah Shan thought she saw hope and came to consult me specifically for advice.  I told Asan: Although there were no abnormalities in the EEG or MRI, there was no doubt that the diagnosis was epilepsy from her repeated stereotyped seizures, grand mal seizures, and the effect on medication, and that it was a focal seizure that later generalized to a full-blown seizure. For epilepsy surgery, the starting point of the seizure must be found, or at least the pathway of the seizure, and the seizure point must be removed or the seizure pathway cut off intraoperatively to be truly effective; moreover, it must be determined that the removal has no effect on the movement, sensation, or memory of the limb before the surgery can be performed. The postoperative effect is not good if the desire for surgery is only satisfied without regard to the actual situation. Or, if the surgery will lead to paralysis, dementia, etc., it should not be done. Generally, seizure onset and seizure pathways can be detected by EEG and MRI can provide suspicion, but there are no abnormal findings for either in Asan. Once surgery is considered, a preoperative evaluation must be performed, which would require repeat long-range video EEG, PET and intracranial electrodes, a huge expense! If one hopes for no abnormal findings, then one should not be checked; so the evaluation is done in the hope that the findings will be abnormal enough to do the surgery, but the costs at the time of surgery and afterwards are even more enormous! This is no less than astronomical for a family with no job, no health insurance, and raising twins. Therefore, I warned her to fully estimate whether she could afford it and to think it through from the moment she took the first step! I didn’t mobilize Sam to get tested before, just because I knew where the knots were.  A person in a nightmare longs to be awake. To wake up the dreamer, one cannot be selfish or reckless.  Is it only possible to stay awake for a long time? No. Surgery is a means, but it is often abandoned for lack of indications. In fact, regular medication and regular life is the most important thing. In Shan’s case, the medication is not yet at the maximum amount, and can continue to increase until Shan is intolerant or seizure-free, but this also requires financial support. In addition, a calm mind is very much needed. If you are impatient, you can easily be misled and you can easily make the wrong choice.